Raising a child with special needs

My sweet cousin Bede was born with down syndrome 20 years ago. He has brought so much Love and Laughter into this family. I am sad that we have not had more time over the years to spend with him due to us living in Florida. Our children LOVED hanging out with Bede. As soon as he got off the school bus, our kids would go running, anxious to greet him! It was very sweet watching them interact with one another. They all knew that even though Bede was 20 years old, he had the heart of a child!! The connection they had was precious.

Our family has the uttermost respect for my aunt, uncle and cousins. Watching the way they have handled and taken care of Bede over the years is truly inspirational. They are the most loving, patient and gentle people I have met in a long time. It is not easy taking care of a child with a disability, one who needs care and attention 24/7. My uncle and his family have often put Bede’s needs before their own consistently demonstrating sacrificial love. This is a true picture of love in action! It has taken a whole lot out of them as they have selflessly raised Bede to be the amazing young man he is today. Words can not express how proud I am of my family. They are heros in our book! Parents of special need children should be recognized and appreciated for all that they do, day in and day out.

Bede sure brought a whole lot of joy into our lives the past few days. We could not have been in a better home this week, one that was filled with an abundance of LOVE and tons of LAUGHTER. We miss you all so much already.


*To the parent(s) of a child with special needs- We hope you feel appreciated for what you are doing, every minute of every day, as you selflessly take care of your precious child. Even on days when you feel noone notices, please know that God sees and he surely notices. YOU are AMAZING!! Thank you for being an example to others, showing us what sacrificial love looks like. We pray that God will continue to give you all the strength, rest, patience and wisdom you need each and every day. May your home be filled with tons of LOVE and LAUGHTER. I definitely think there is a special reward for you in Heaven. 🙂

4 thoughts on “Raising a child with special needs

  1. This is so wonderful! We too have a special needs child and will always have a special place in our hearts . You all be careful out there ! It gets crazy on the road sometimes. i know ,I drive a truck for a living . Love your stories ! God Bless

  2. Thank you for that. Alot of people dont know what parents with children with special needs go thur. Its a full time job. You dont get a good night rest. Your always so stressed out. My sarah is 6 an is artistic. She is nonverbal So its an everyday battle with her with melt ddowns after melt downs because I dont know what she wants sometimes. But with all the stress all the melt downs all the sleepless nights I wouldn’t trade it for the world. Somebody once told me that God only gives us so much that we can handle. An he gave me sarah for a reason. I can handle it. But I know deep down there another reason why God gave me this little girl. I just havent found it yet.

    • Hi Katrina,
      I have a 19 year old Autistic son, Judah. I must share that we participated in the trial using Oxytocin for Autism and it changed our lives!! I would love to share more if you are interested.
      Many blessings to you.



  3. I work with special needs children every day. It brings both challenges and blessings. There are agencies and support groups for families who are raising children with special needs. I would really encourage every family in this position to become part of one of these organizations. It could become a life saver or at least help you keep your sanity. God bless you all!

Leave a Comment